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"No its not catching! just an intolerance to Gluten mainly found in Wheat, Barley and Oats. Male was diagnosed in 2011. Are there any swinging coeliacs out there?" So are you the gluten free Lattimers of the tv advert then | |||
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"I am a self diagnosed gluten intolerant and it was amazing the difference it made cutting out gluten. Feel so much better for it. Had blood test for coeliac but came back negative but it doesn't doesn't register intolerance. Anyone want more into pm me. " Exactly the same here! Still working out what does / doesn't affect me. | |||
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"I still struggle to find good bread. Does anyone have a good recipe that I can use in my breadmaker?" GF bread tastes of nothing but sadness. | |||
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"Now that has got to be a nightmare! I wish you well " Thanks...my youngest was diagnosed 7 years ago so I'm a dab hand at it now - lots of home baking is the way forward! x | |||
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"Once you know you have to change your diet it gets progressively easier. Most of the major supermarkets are now selling a half decent range of GF products. I still struggle to find good bread. Does anyone have a good recipe that I can use in my breadmaker?" Try Bakels bread mix, had fairly good results so far from the breadmaker | |||
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"A few years back I was unable to eat certain suger free drinks and sweet corn both used to involve multiple hours in the loo At the moment they appear to be ok I stopped eating them for a while and evrythihg is ok " A lot of sugar free stuff contains xylitol, which if have a decent amount acts as a laxative | |||
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"I have dodgey guts most of the time. Think mine is white bread definatly and probably more. Nightmare when going out and have to drive back home each time. had it since a kid but not done anything about it" I suggest you get yourself checked out. If you are Coeliac and you continue eating Gluten you will end up with Brittle Bone Disease! | |||
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"Have you signed up to coeliac UK? Get a full guide into what you can eat and what you can buy on supermarket. Student dietitian by trade" Thanks mail. Yes I have been signed onto Coeliac UK since 2012. This is a great source of info and membership is very cheap | |||
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"My ex wife is a coeliac and when we would go out, the responses we would get from restaurants, cafe's was in some ways dam right rude. One that sticks in my mind was we were told "it won't kill you." "Yes it fucking will," I'm a chef & will try my dam best to cook for a customers a gluten free diet so they too can enjoy their lunch/dinner, just like the rest of us non coeliacs." Good for you, I like your style | |||
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"You know that you don't actually have to eat any carbs, don't you? I've been inadvertently GF for nine years by not eating any processed food or carbs. It's easy and much healthier." That's actually a really ignorant statement to make to people suffering from coeliac disease - and yes I do mean suffering! You won't have been 'inadvertently' totally gluten free just by cutting out carbs and processed food (unless you've been checking every product you buy, which I doubt), but any you may have eaten will have had no effect on you...to a coeliac a miniscule amount of a gluten-containing food can lead to crippling stomach pains, extreme sickness and diarrhoea, and even hospitalisation. It's not easy, it's more expensive and it takes constant vigilance and care - but it is manageable and thankfully there's a lot of support for coeliacs now plus a wide range of products in supermarkets. It's not a choice or fad like your diet but a critical and essential life change. Try engaging your brain and doing some basic research before you comment next time eh? | |||
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"You know that you don't actually have to eat any carbs, don't you? I've been inadvertently GF for nine years by not eating any processed food or carbs. It's easy and much healthier. That's actually a really ignorant statement to make to people suffering from coeliac disease - and yes I do mean suffering! You won't have been 'inadvertently' totally gluten free just by cutting out carbs and processed food (unless you've been checking every product you buy, which I doubt), but any you may have eaten will have had no effect on you...to a coeliac a miniscule amount of a gluten-containing food can lead to crippling stomach pains, extreme sickness and diarrhoea, and even hospitalisation. It's not easy, it's more expensive and it takes constant vigilance and care - but it is manageable and thankfully there's a lot of support for coeliacs now plus a wide range of products in supermarkets. It's not a choice or fad like your diet but a critical and essential life change. Try engaging your brain and doing some basic research before you comment next time eh? " I didn't say I wasn't, did I? You're also assuming that none of my family or friends have it. My diet is a critical life change too. If I ate yours, I would die a long, lingering, rotting death. My point is if you base your diet on protein, vegetables, fruit, nuts, seeds, dairy and good fat, you wouldn't need to check labels for overpriced food that nobody needs to eat. If you desire something sweet or want to replace bread with something else, it's great that there are substitutes but you don't need them. In the early days of my life change, I also searched frantically for substitute foods but I soon dropped them when I realised it was pointless. | |||
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"I have dodgey guts most of the time. Think mine is white bread definatly and probably more. Nightmare when going out and have to drive back home each time. had it since a kid but not done anything about it" Oh my - if you have it that badly you really need to see your doctor for tests and start taking action - it is actually dangerous to your health to leave it untreated if it is full blown celiac disease. Mrs x | |||
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"You know that you don't actually have to eat any carbs, don't you? I've been inadvertently GF for nine years by not eating any processed food or carbs. It's easy and much healthier. That's actually a really ignorant statement to make to people suffering from coeliac disease - and yes I do mean suffering! You won't have been 'inadvertently' totally gluten free just by cutting out carbs and processed food (unless you've been checking every product you buy, which I doubt), but any you may have eaten will have had no effect on you...to a coeliac a miniscule amount of a gluten-containing food can lead to crippling stomach pains, extreme sickness and diarrhoea, and even hospitalisation. It's not easy, it's more expensive and it takes constant vigilance and care - but it is manageable and thankfully there's a lot of support for coeliacs now plus a wide range of products in supermarkets. It's not a choice or fad like your diet but a critical and essential life change. Try engaging your brain and doing some basic research before you comment next time eh? " | |||
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"I get bread etc. on prescription. The best is definitely Genius I think. Asda were better at GF foods way before Tesco and their own brand range is relatively well priced." I enjoy the genius crumpets | |||
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"No its not catching! just an intolerance to Gluten mainly found in Wheat, Barley and Oats. Male was diagnosed in 2011. Are there any swinging coeliacs out there?" Yes common in my family | |||
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"Interesting bcos my GP argued with me about all of this…to the point that he called me a 'delusional hypochondriac'. I now treat all GPs with the contempt that anyone who went to medical school but failed to manage to specialise in something deserves! Immune function is split into separate functions of identifying a foreign body & then responding accordingly with histamine or white blood cells. My GPs cannot explain how this works bcos they didn't do this at medical school!?! Anyway, I make my own bread with Spelt flour. The complex functioning of my immune system has been wonderful for my health & wellbeing bcos I cook almost everything entirely from scratch & grow my own organic veg. I don't have to watch my weight now & cooking & baking are part of my everyday routine & I can make super quality food for next to nothing & never crave junk food " Not all gp's are the same I have had many good ones | |||
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"I have dodgey guts most of the time. Think mine is white bread definatly and probably more. Nightmare when going out and have to drive back home each time. had it since a kid but not done anything about it" I`m not celiac but even so I eat very little bread. Find it bloats me up but then I do have a hiatus hernia. | |||
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"Mother of 2 coeliacs here & owner of a gluten free home baking business Even if you test negative please ask for a retest. You will need to add gluten back in to your diet for at least 6 weeks prior to the test. ONLY a biopsy will confirm coeliac disease. If diagnosed you can then have certain staples on prescription. There is an awesome company that bake awesome bread (so the kids tell me) also the best donughts they have ever tasted. Please feel free to message me for the name (can't put it on here) Also, join some gluten free pages on the popular social media sites. They regularly post about places to eat out & there is a page dedicated to gluten free fish & chip shops nationwide. My kids had their first ever fish & chips by the sea last summer " Thank you for your post. Reintroducing gluten into your diet is exactly what we advise our patients prior to having a gastrostomy and a duodenal biopsy to determine coeliac disease. Once there is a positive result patients are then contacted by a dietician and food stuff can be obtained by prescription | |||
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"I think most GP,s are little more than witch doctors, might as well diagnose yourself" | |||
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"Interesting bcos my GP argued with me about all of this…to the point that he called me a 'delusional hypochondriac'. I now treat all GPs with the contempt that anyone who went to medical school but failed to manage to specialise in something deserves! Immune function is split into separate functions of identifying a foreign body & then responding accordingly with histamine or white blood cells. My GPs cannot explain how this works bcos they didn't do this at medical school!?! Anyway, I make my own bread with Spelt flour. The complex functioning of my immune system has been wonderful for my health & wellbeing bcos I cook almost everything entirely from scratch & grow my own organic veg. I don't have to watch my weight now & cooking & baking are part of my everyday routine & I can make super quality food for next to nothing & never crave junk food Not all gp's are the same I have had many good ones" Not in my lifetime!!! | |||
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"I (Ang) diagnosed 2 years ago, followed a strict gf diet for a year, felt amazing so started dipping back to real food again and managed to gain some much needed weight Now paying the price as my system is all over the place Anyway strictly going back to gf but if any of you have advice on how not to lose weight I would be most grateful" Hi Ang Sorry no actual advice on how not to lose weight, but are you registered with Coeliac UK? They offer great advice. I am sure somewhere on their website there will be an article on your plight. Please don't dip out again from your diet, not a nag, just concerned as it will cause you huge problems in the future. | |||
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"No its not catching! just an intolerance to Gluten mainly found in Wheat, Barley and Oats. Male was diagnosed in 2011. Are there any swinging coeliacs out there? It's actually an auto immune disease, not an just an intolerance to gluten Yes common in my family" | |||
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"The good thing about being a coeliac is that it's diet controlled. Could have been diagnosed with something a lot worse. " | |||
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"Been living with this for about 6 years now, went on the gluten free diet for 5 years and honestly most of the food tasted like cardboard or had the texture of it, put myself on a keto diet nine months back and loving life again." did you go gluten free through choice or was it from a medical diagnosis? It was quite difficult at first but it’s easy when I’m at home because everything in my kitchen is gluten free ... I find it really difficult if I go a away for a few days I usually end up living on snacks or starving because I’m scared to eat out | |||
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"Been living with this for about 6 years now, went on the gluten free diet for 5 years and honestly most of the food tasted like cardboard or had the texture of it, put myself on a keto diet nine months back and loving life again. did you go gluten free through choice or was it from a medical diagnosis? It was quite difficult at first but it’s easy when I’m at home because everything in my kitchen is gluten free ... I find it really difficult if I go a away for a few days I usually end up living on snacks or starving because I’m scared to eat out" from medical reasons, literaly a bread crumb that found its way into my food would leave me in agony for days. | |||
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"Been living with this for about 6 years now, went on the gluten free diet for 5 years and honestly most of the food tasted like cardboard or had the texture of it, put myself on a keto diet nine months back and loving life again." The Keto wins again! Not heard one bad thing about it amongst people I know. Are there any drawbacks for you? | |||
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"No its not catching! just an intolerance to Gluten mainly found in Wheat, Barley and Oats. Male was diagnosed in 2011. Are there any swinging coeliacs out there?" Hi, my son has Coeliacs and I relearned cooking to insure he does not feel left out at dinner time (GF replacements for various ingredients etc.). I have yet to master a ‘light’ cake mixture, but he loves his pasta. As an aside, Oats do not contain gluten, but you have to be aware of cross contamination in their production etc. | |||
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"just an intolerance to Gluten" No it's not, it is an autoimmune disease. | |||
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"just an intolerance to Gluten No it's not, it is an autoimmune disease. " Sorry, thought it was a new thread | |||
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"Coeliac swinger here! If you ever did find a good bread recipe please do let me know, as I still haven’t found anything half decent " The new tesco gluten free posh looking loaf isn't half bad. | |||
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"No its not catching! just an intolerance to Gluten mainly found in Wheat, Barley and Oats. Male was diagnosed in 2011. Are there any swinging coeliacs out there?" male half was diagnosed 11 years ago bit of a pain but life choices have to be made and live with it | |||
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"My man has celiac x found it hard at first x he loves bread x the only one he likes is the tiger loaf from a well known Baker beginning with W and ends with Burton lol xxx" . I actually get warburtons bread and bread rolls on prescription it’s sliced bread it’s not as nice as the tiger bread but it’s eatable | |||
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"I actually get warburtons bread and bread rolls on prescription it’s sliced bread it’s not as nice as the tiger bread but it’s eatable " I used to till Covid and nothing was available. Then when it did arrive is was already stale | |||
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"I actually get warburtons bread and bread rolls on prescription it’s sliced bread it’s not as nice as the tiger bread but it’s eatable I used to till Covid and nothing was available. Then when it did arrive is was already stale " I’m allowed 8 loaves a month plus bread rolls I freeze it which isn’t ideal I use it mainly to toast | |||
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"I have coeliac. No kissing me if you've just eaten gluten or d*unk beer/lager. Pain in the ass. I so miss getting noodles from the Chinese as a treat!" you can get rice noodles | |||
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"One thing to remember if anyone is getting tested is you have to eat a normal diet containing gluten for 2 weeks prior to the test. If you avoid gluten before the test it will always show negative. " It's actually 6-12 weeks as per Coeliacs UK. I was once told 2 weeks by my GP, but that info is just flatout wrong and the test will still show negative if you've been eating a GF diet and return to eating gluten for only 2 weeks. The only thing you'll succeed in by following that advice is making yourself ill for several weeks. | |||
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"I have coeliac. No kissing me if you've just eaten gluten or d*unk beer/lager. Pain in the ass. I so miss getting noodles from the Chinese as a treat! you can get rice noodles" I know, but the kitchen in a takeaway place is cross-contamination Hell. Not worth it unless they're coeliac uk accredited. It's the normal noodles I miss anyway. | |||
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"Coeliac swinger here! If you ever did find a good bread recipe please do let me know, as I still haven’t found anything half decent The new tesco gluten free posh looking loaf isn't half bad. " Their own brand Tiger bread do you mean? I buy that most of the time. The nearest thing to normal bread I've found. Expensive though for so few slices, but worth it. | |||
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"I’m allowed 8 loaves a month plus bread rolls I freeze it which isn’t ideal I use it mainly to toast " Me too, perhaps I better check whether the supply chain is fixed | |||
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"I’m allowed 8 loaves a month plus bread rolls I freeze it which isn’t ideal I use it mainly to toast Me too, perhaps I better check whether the supply chain is fixed " i think different health authorities have different rules | |||
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